HSE Skyclarys Decision Looms for Friedreich's Ataxia Patients as Families Await Reimbursement Ruling
The HSE is preparing to make a decision on whether to reimburse Skyclarys (omaveloxolone), the first disease-modifying treatment for Friedreich's ataxia, for Irish patients. The drug, which costs approximately €280,000 per patient per year, has been approved by the European Medicines Agency but has not yet been made available through the Irish public health system.